TREAT-NMD https://www.treat-nmd.org/ Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world Thu, 31 Jul 2025 15:59:49 +0000 en-GB hourly 1 https://www.treat-nmd.org/wp-content/uploads/2022/11/cropped-treat-favicon-32x32.png TREAT-NMD https://www.treat-nmd.org/ 32 32 The Online Registry Portal Launch https://www.treat-nmd.org/the-online-registry-portal-launch/ Thu, 31 Jul 2025 15:42:45 +0000 https://www.treat-nmd.org/?p=9066 We’re excited to announce the phased launch of the new online communication portal designed specifically for registry network curators. As previewed during the June subgroup meetings, the Registry Portal is now being […]

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]]> August is Spinal Muscular Atrophy (SMA) Awareness Month https://www.treat-nmd.org/august-is-spinal-muscular-atrophy-sma-awareness-month/ Thu, 31 Jul 2025 15:36:56 +0000 https://www.treat-nmd.org/?p=9063 Spinal Muscular Atrophy (SMA) is a progressive neurodegenerative disease that affects motor nerve cells in the spinal cord, impacting essential muscle functions such as breathing, eating, crawling, and walking. Throughout […]

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]]> The TREAT-NMD Advisory Committee for Therapeutics (TACT) https://www.treat-nmd.org/the-treat-nmd-advisory-committee-for-therapeutics-tact/ Thu, 31 Jul 2025 15:01:52 +0000 https://www.treat-nmd.org/?p=9058 The TREAT-NMD Advisory Committee for Therapeutics (TACT) is a globally recognised, multidisciplinary panel of experts that convenes several times a year to review and provide independent guidance on key aspects […]

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]]> TREAT-NMD® at PPMD Annual Conference 2025 https://www.treat-nmd.org/treat-nmd-at-ppmd-annual-conference-2025/ Tue, 29 Jul 2025 14:14:09 +0000 https://www.treat-nmd.org/?p=9048 TREAT-NMD® was pleased to attend PPMD’s Annual Conference in Las Vegas this June, where we connected with key partners across industry, patient advocacy, and research. Representing the network were Matt […]

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]]> PaLaDIn – Interactium® Workshop https://www.treat-nmd.org/paladin-interactium-workshop/ Tue, 29 Jul 2025 14:10:18 +0000 https://www.treat-nmd.org/?p=9043 As part of the PaLaDIn project, TREAT-NMD hosted an Interactium® workshop in Amsterdam on the 16th-17th July, bringing together the PaLaDIn partners both in person and virtually. This event fostered […]

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]]> DMD and SMA Masterclasses, Prague https://www.treat-nmd.org/dmd-and-sma-masterclasses-prague/ Tue, 29 Jul 2025 14:06:52 +0000 https://www.treat-nmd.org/?p=9040 TREAT-NMD® recently hosted two highly successful expert masterclasses in Prague, bringing together healthcare professionals from across Europe and beyond to deepen their knowledge of spinal muscular atrophy (SMA) and Duchenne […]

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]]> Now Live: The LGMD Family Guide https://www.treat-nmd.org/now-live-the-lgmd-family-guide/ Tue, 29 Jul 2025 14:03:52 +0000 https://www.treat-nmd.org/?p=9036 We’re excited to announce the launch of the Limb-Girdle Muscular Dystrophy (LGMD) Family Guide, now available on the TREAT-NMD® website. This plain-language guide has been developed to support individuals and […]

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]]> TREAT-NMD® Becker Education and Engagement Days – September 2025 https://www.treat-nmd.org/treat-nmd-becker-education-and-engagement-days-september-2025/ Tue, 29 Jul 2025 13:59:29 +0000 https://www.treat-nmd.org/?p=9033 TREAT-NMD® is pleased to announce two upcoming Becker Education and Engagement Days taking place in Newcastle, UK, and Malaga, Spain, in September 2025. These events are designed for individuals living […]

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]]> TREAT-NMD® Conference 2026: Registration and Abstract Submissions Now Open https://www.treat-nmd.org/treat-nmd-conference-2026-registration-and-abstract-submissions-now-open/ Tue, 29 Jul 2025 13:53:27 +0000 https://www.treat-nmd.org/?p=9029 We’re excited to announce that the programme for the 8th International TREAT-NMD® Conference is now available! Taking place from 10–12 February 2026 at the Altis Grand Hotel in Lisbon, Portugal, […]

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]]> Join us for the Becker Patient Education and Engagement Days – September 2025 https://www.treat-nmd.org/join-us-for-the-becker-patient-education-and-engagement-days-september-2025/ Tue, 01 Jul 2025 10:47:27 +0000 https://www.treat-nmd.org/?p=8955 TREAT-NMD is pleased to announce two upcoming Becker Education and Engagement Days taking place in September 2025, designed for individuals living with Becker muscular dystrophy, their families, and members of […]

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