Uncategorised Archives - TREAT-NMD Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world Mon, 30 Jun 2025 15:03:57 +0000 en-GB hourly 1 https://www.treat-nmd.org/wp-content/uploads/2022/11/cropped-treat-favicon-32x32.png Uncategorised Archives - TREAT-NMD 32 32 Expansion to Network Infrastructure https://www.treat-nmd.org/expansion-to-network-infrastructure/ Mon, 30 Jun 2025 15:02:56 +0000 https://www.treat-nmd.org/?p=8936 TREAT-NMD are currently expanding the infrastructure available to the registry curators who are all valued members of our network. This year, we have been focusing on what we can provide […]

The post Expansion to Network Infrastructure appeared first on TREAT-NMD.

]]> PaLaDIn General Assembly Rome 2025 https://www.treat-nmd.org/paladin-general-assembly-rome-2025/ Tue, 29 Apr 2025 13:09:36 +0000 https://www.treat-nmd.org/?p=8748 On March 3rd and 4th 2025, members of the PaLaDIn consortium convened in Rome for their annual General Assembly meeting. This gathering marked a significant occasion for the consortium, which […]

The post PaLaDIn General Assembly Rome 2025 appeared first on TREAT-NMD.

]]> 2025 Call for grant application by Duchenne Parent Project Netherlands: Incentive grant https://www.treat-nmd.org/2025-call-for-grant-application-by-duchenne-parent-project-netherlands-incentive-grant/ Thu, 03 Apr 2025 11:37:43 +0000 https://www.treat-nmd.org/?p=8627 Submission deadline: 15 July 2025 The Duchenne Parent Project Netherlands is pleased to announce the opening of the 2025 research call. This international call aims to fund the development of […]

The post 2025 Call for grant application by Duchenne Parent Project Netherlands: Incentive grant appeared first on TREAT-NMD.

]]> ISO 27001:2022 accreditation https://www.treat-nmd.org/iso-270012022-accreditation/ Fri, 21 Mar 2025 12:26:32 +0000 https://www.treat-nmd.org/?p=8595 TREAT-NMD is committed to safeguarding our clients’ data and ensuring the integrity, confidentiality, and availability of our information systems. We proudly achieved ISO 27001:2022 accreditation for our Information Security Management […]

The post ISO 27001:2022 accreditation appeared first on TREAT-NMD.

]]> Grant Opportunity in Nemaline Myopathy Research https://www.treat-nmd.org/grant-opportunity-in-nemaline-myopathy-research/ Fri, 21 Mar 2025 12:16:08 +0000 https://www.treat-nmd.org/?p=8591 Grant Opportunity in Nemaline Myopathy Research: AFBS for Nemaline Myopathy calls for research proposals (up to $100K / up to 3 years). The Letter of Intent (LOI) deadline is April 15. […]

The post Grant Opportunity in Nemaline Myopathy Research appeared first on TREAT-NMD.

]]> Join the Second Edition of the Summer School on Neuromuscular Diseases https://www.treat-nmd.org/join-the-second-edition-of-the-summer-school-on-neuromuscular-diseases/ Thu, 20 Mar 2025 10:14:55 +0000 https://www.treat-nmd.org/?p=8578 We are excited to announce the second edition of the Summer School on Neuromuscular Diseases, co-organized by the European Reference Network for rare neuromuscular diseases (ERN EURO-NMD) and the French […]

The post Join the Second Edition of the Summer School on Neuromuscular Diseases appeared first on TREAT-NMD.

]]> Spot Available for Virtual TACT Review – Apply Now! https://www.treat-nmd.org/spot-available-for-virtual-tact-review-apply-now/ Wed, 19 Mar 2025 17:07:53 +0000 https://www.treat-nmd.org/?p=8575 We are pleased to announce that there is an open spot for a virtual TACT (TREAT-NMD Advisory Committee for Therapeutics) review on Tuesday, July 29th, 2025. This is a unique opportunity […]

The post Spot Available for Virtual TACT Review – Apply Now! appeared first on TREAT-NMD.

]]> Highlighting Cure HSPB8: Advocacy for a Rare Disease https://www.treat-nmd.org/highlighting-cure-hspb8-advocacy-for-a-rare-disease/ Wed, 19 Mar 2025 16:53:20 +0000 https://www.treat-nmd.org/?p=8569 The post Highlighting Cure HSPB8: Advocacy for a Rare Disease appeared first on TREAT-NMD.

]]> SMA White Paper updates to support SMA newborn screening https://www.treat-nmd.org/sma-white-paper-updates-to-support-sma-newborn-screening/ Tue, 25 Feb 2025 10:45:18 +0000 https://www.treat-nmd.org/?p=8459  In SMA, newborn screening (NBS), dramatically change the life of young babies. SMA Europe has created an Alliance involving clinicians, patients, pharmaceutical industry and DNA testing producers, to promote SMA […]

The post SMA White Paper updates to support SMA newborn screening appeared first on TREAT-NMD.

]]> 2025 Annual Curators Meeting (ACM) https://www.treat-nmd.org/2025-annual-curators-meeting-acm/ Tue, 25 Feb 2025 10:34:25 +0000 https://www.treat-nmd.org/?p=8453 The 2025 Annual Curators Meeting (ACM) took place in Milan from February 10th to 12th, a fitting tribute to outgoing chair Anna Ambrosini, who calls the city home. This year’s […]

The post 2025 Annual Curators Meeting (ACM) appeared first on TREAT-NMD.

]]>