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Tag: SMA

Home / Archives for SMA

SMA

Spinal Muscular Atrophy Awareness Month 2024: Advancing Diagnosis, Care & Treatment

Spinal Muscular Atrophy Awareness Month 2024

August holds significant importance for our community as we unite to advance spinal muscular atrophy (SMA) care and research, and to raise awareness of the disease. Observing SMA Awareness Month throughout August, we aim to raise awareness, educate, advocate, and support those affected by SMA. This annual campaign serves as a beacon of hope, fostering awareness and driving fundraising efforts to find a cure while empowering those living with SMA to live life to the fullest.

29 August 2024

SMA Europe launches their Call for Research nr. 12

SMA Europe Call for Research nr. 12

This new Call for SMA research projects is open to research proposals that address the needs of people who live with SMA and demonstrate a clear pathway to impacting those in the short or longer term.

27 March 2024

4th International Congress on Spinal Muscular Atrophy

SMA Europe will host the 4th International Congress on Spinal Muscular Atrophy, from 14th to 16th March 2024 in Ghent, Belgium. The scientific congress aims to bring together an international […]

SMA Research & Clinical Care Meeting

The 2023 Annual SMA Research & Clinical Care Meeting will be held in Orlando, Florida at Disney’s Swan and Dolphin Hotels from Wednesday, June 28 – Friday, June 30, 2023. Bringing […]

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us