Due to the fantastic work of the Croatian Muscular Dystrophy Association, the SMA Standard of Care Family Guide is now available in Croatian.Â
TREAT-NMD news
Save the Date: Our Becker Education and Engagement Patient Event, Europe 2024 has been confirmed!
We are thrilled to announce that our first-ever Becker Education and Engagement Patient Event, Europe 2024 has now been confirmed. This ground-breaking event is dedicated specifically to patients with Becker Muscular Dystrophy (BMD) and promises to be a landmark occasion for the BMD community.
Celebrating World FSHD Day with TREAT-NMD: United for Awareness and Change
Every year on June 20th, the world unites to observe World FSHD Day, a day dedicated to raising awareness about Facioscapulohumeral Muscular Dystrophy (FSHD). As the most common form of muscular dystrophy, FSHD affects over a million individuals globally, impacting their ability to perform everyday tasks and, poignantly, even to just smile. This day is a beacon of hope, resilience, and solidarity for FSHD patients, their families, and friends.
Join Us for an Exclusive Networking Event: Register Your Interest Now
As we commemorate the 15th anniversary of the TREAT-NMD Advisory Committee for Therapeutics (TACT), we’re excited to extend host an exclusive networking event. This gathering offers a rare opportunity to […]
Registration is now open for the TREAT-NMD Advisory Committee for Therapeutics Symposium
Registration is now open for the first Symposium by the TREAT-NMD Advisory Committee for Therapeutics (TACT). TACTs aim is to give transparent and consistent guidance to the neuromuscular research community […]
Strengthening the Fight Against Neuromuscular Diseases: TREAT-NMD Supporting the Journal of Neuromuscular Diseases
At TREAT-NMD, our mission is to foster a collaborative, inclusive global network and organisational infrastructure. Our goal is to overcome fragmentation and provide essential support services, information, and data that drive advancements in treatment, diagnosis, and care for neuromuscular patients worldwide. In line with this mission, we are proud to support the Journal of Neuromuscular Diseases (JND), a publication that plays a pivotal role in disseminating cutting-edge research and clinical findings in our field.
