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X-WR-CALDESC:Events for TREAT-NMD
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DTSTART;TZID=Europe/London:20250829T080000
DTEND;TZID=Europe/London:20250830T170000
DTSTAMP:20250802T023649
CREATED:20250515T132842Z
LAST-MODIFIED:20250515T132842Z
UID:8778-1756454400-1756573200@www.treat-nmd.org
SUMMARY:From SMA Europe: We are calling for abstracts to join us at the 1st International Clinical Care Symposium on Spinal Muscular Atrophy
DESCRIPTION:Our Call for Abstracts is now open for the 1st International Clinical Care Symposium on SMA\, which will take place on 29–30 August 2025 in Milan\, Italy. \nThe event will be held in a hybrid format. \nThis first edition\, “Medical Emergencies in SMA: Pathophysiology\, Prevention\, and Response”\, will focus on the causes\, management\, and prevention of acute medical events that can lead to life-threatening emergencies for individuals living with SMA\, as well as strategies for their prevention and management. \nThe Symposium will bring together an international group of SMA-expert researchers and multidisciplinary clinical professionals (including physicians\, nurses\, physiotherapists\, occupational therapists\, nutritionists\, speech specialists)\, along with patient advocates and industry representatives. \nThe event will be accredited for continuing medical education for healthcare professionals and also provides an excellent opportunity for early-stage researchers and clinicians to network and share their work. \nAll in-person attendees are invited to submit an abstract for consideration as a poster presentation and/or a short talk. \nAbstracts are encouraged on any emergency-related aspect of SMA\, including fundamental research across different domains\, clinical presentations of acute episodes\, and practical approaches to prevention or management. \nTopics featured in the main sessions may include: \n•                 Metabolic system in SMA: biological basis and different types of metabolic disorders in SMA; impairment of liver and kidneys; dietary and nutritional needs\, including clinical presentations and management strategies \n•                 Respiratory system in SMA: pathophysiology and anatomical considerations; tools and methods to prevent and manage respiratory complications \n•                 Bulbar system in SMA: anatomy and physiology of swallowing; clinical presentations such as choking episodes and aspiration-related illnesses \n•                 Country experiences: approaches to preventing and managing clinical emergencies in SMA\, addressing both caregivers and healthcare professionals\, particularly in emergency settings; highlighting existing gaps and unmet needs in the management of critical episodes. \nAdditional relevant topics may include\, but are not limited to\, the cardiovascular\, skeletal\, gastrointestinal\, and urological systems\, as well as anaesthetic considerations. \nAbstracts will be selected for poster presentations and/or talks. You can find more information and submit your abstract here: https://www.sma-europe.eu/sma-care-symposium \nDeadline for abstract submission: 31-May-2025.
URL:https://www.treat-nmd.org/event/from-sma-europe-we-are-calling-for-abstracts-to-join-us-at-the-1st-international-clinical-care-symposium-on-spinal-muscular-atrophy/
CATEGORIES:External Event
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250905
DTEND;VALUE=DATE:20250907
DTSTAMP:20250802T023649
CREATED:20250520T100728Z
LAST-MODIFIED:20250520T101120Z
UID:8802-1757030400-1757203199@www.treat-nmd.org
SUMMARY:Becker Patient Education & Engagement Event – Newcastle\, UK
DESCRIPTION:Location: St James’ Park\, Newcastle\, UKDate: Friday 5th – Saturday 6th September 2025Language: EnglishRegister Your Interest: Click here to complete the form \nTREAT-NMD\, in collaboration with the BMD Hub at the John Walton Centre\, is delighted to host our second Becker Patient Education and Engagement Day in Newcastle. \nThis event brings together patients\, families\, carers\, and professionals to share knowledge\, build community\, and support those living with Becker muscular dystrophy (BMD). \nWhat to expect: \n\n\nExpert-led sessions on standards of care\, cardiac care\, physical therapy\, genetics\, and mental health. \n\n\nInteractive workshops\, round table discussions\, and stretching sessions. \n\n\nNetworking opportunities and social events. \n\n\nDinner and informal gathering on Friday evening. \n\n\nThis free\, English-speaking event is open to individuals aged 14 and over living with BMD and their carers or family members. \nWe welcome participants from across the UK\, the Netherlands\, and other Northern European countries. \n👉 Please register your interest early. Travel support may be available for selected attendees.
URL:https://www.treat-nmd.org/event/becker-patient-education-engagement-event-newcastle-uk/
LOCATION:Newcastle upon Tyne\, St James Park\, Newcastle upon Tyne\, Tyne and Wear\, NE1 4ST\, United Kingdom
CATEGORIES:Treat NMD Event
ATTACH;FMTTYPE=image/png:https://www.treat-nmd.org/wp-content/uploads/2025/05/Lisbon.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250908T080000
DTEND;TZID=Europe/London:20250908T170000
DTSTAMP:20250802T023649
CREATED:20241206T093704Z
LAST-MODIFIED:20241206T122832Z
UID:8126-1757318400-1757350800@www.treat-nmd.org
SUMMARY:British Myology Society Adult Muscle Teaching Day 2025
DESCRIPTION:Save the date: 8 September 2025 \nVenue: Worcester College\, Oxford (TBC) \nFurther information \nContact: cnmd.contact@ucl.ac.uk \nThe extremely popular and well-reviewed BMS Adult Muscle Teaching Day is a 1 day event aimed at education of junior / early career stage clinicians with neuromuscular involvement. \n 
URL:https://www.treat-nmd.org/event/british-myology-society-adult-muscle-teaching-day-2025/
ATTACH;FMTTYPE=image/jpeg:https://www.treat-nmd.org/wp-content/uploads/2024/12/Myology.jpg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250908T080000
DTEND;TZID=Europe/London:20250909T170000
DTSTAMP:20250802T023649
CREATED:20241206T093447Z
LAST-MODIFIED:20241206T123359Z
UID:8123-1757318400-1757437200@www.treat-nmd.org
SUMMARY:British Myology Society Annual Meeting 2025
DESCRIPTION:Save the date: 8 and 9 September 2025 (TBC) \nVenue: Worester College\, Oxford (TBC) \nFurther information \nContact: cnmd.contact@ucl.ac.uk \nThe BMS Annual Meeting is a 2 day event which attracts the country’s foremost neuromuscular clinicians and allied professionals; and is aimed (as in previous years) at education of neuromuscular specialists and sharing the latest knowledge and developments in this area of practice.
URL:https://www.treat-nmd.org/event/british-myology-society-annual-meeting-2025/
CATEGORIES:External Event
ATTACH;FMTTYPE=image/jpeg:https://www.treat-nmd.org/wp-content/uploads/2024/12/Myology.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250912
DTEND;VALUE=DATE:20250914
DTSTAMP:20250802T023649
CREATED:20250520T101011Z
LAST-MODIFIED:20250520T101011Z
UID:8807-1757635200-1757807999@www.treat-nmd.org
SUMMARY:Becker Patient Education & Engagement Event – Malaga\, Spain
DESCRIPTION:Location: Barceló Hotel\, Malaga\, SpainDate: Friday 12th (afternoon) – Saturday 13th (morning) September 2025Languages: French\, Spanish\, Italian\, German📝 Register Your Interest: Click here to complete the form \nFollowing the success of our 2024 events in Amsterdam and Milan\, TREAT-NMD is pleased to invite you to our next Becker Patient Education and Engagement Day in Malaga\, supported by our European patient organisation partners. \nThis free event is specifically designed for French\, Spanish\, Italian\, and German-speaking individuals affected by Becker muscular dystrophy (BMD). \nWhat to expect: \n\n\nSessions delivered with simultaneous interpretation. \n\n\nTalks and Q&As from specialists in genetics\, psychological support\, physical activity\, and research. \n\n\nSmall group workshops\, round tables\, and peer-to-peer networking. \n\n\nSocial dinner on Friday evening to build community connections. \n\n\nThis event is for patients aged 14+ and one accompanying parent\, carer\, or family member. A contribution toward travel and accommodation will be offered to selected participants (details to follow after place confirmation). \n👉 Don’t miss this opportunity to connect\, learn\, and grow with the wider Becker community.
URL:https://www.treat-nmd.org/event/becker-patient-education-engagement-event-malaga-spain/
LOCATION:Malaga
CATEGORIES:Treat NMD Event
ATTACH;FMTTYPE=image/png:https://www.treat-nmd.org/wp-content/uploads/2025/05/Lisbon.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251120T000000
DTEND;TZID=Europe/London:20251121T000000
DTSTAMP:20250802T023649
CREATED:20250513T105601Z
LAST-MODIFIED:20250513T105636Z
UID:8773-1763596800-1763683200@www.treat-nmd.org
SUMMARY:ICNMDigital 2025 returns this November
DESCRIPTION:ICNMDigital 2025 returns this November—bringing together leading clinicians\, researchers\, and healthcare professionals for a two-day online journey into the latest in neuromuscular disease diagnosis\, treatment\, and innovation. \nOver two focused days\, dive into four key topic areas: \n\nMuscle Disorders\nPeripheral Neuropathies\nNeuromuscular Junction Disorders\nMotor Neuron Diseases\n\nExpect high-impact sessions\, interactive discussions\, and industry-sponsored symposia—all available from wherever you are in the world. \nImportant dates: \nRegistration Opens: 11 August 2025\nEarly Bird Deadline: 31 October 2025\nLive Event: 20–21 November 2025 \nFully Virtual | Globally Accessible | Expert-Led
URL:https://www.treat-nmd.org/event/icnmdigital-2025-returns-this-november/
CATEGORIES:External Event
ATTACH;FMTTYPE=image/png:https://www.treat-nmd.org/wp-content/uploads/2025/05/ICNMD2026_logo_standard.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251125T080000
DTEND;TZID=Europe/London:20251125T170000
DTSTAMP:20250802T023649
CREATED:20241206T093942Z
LAST-MODIFIED:20241206T115409Z
UID:8129-1764057600-1764090000@www.treat-nmd.org
SUMMARY:British Myology Society Muscle MRI Workshop 2025
DESCRIPTION:Online event \nFurther information \nContact: cnmd.contact@ucl.ac.uk \nThis event will cover topics in muscle MRI of relevance to neurologists\, rheumatologists and musculoskeletal radiologists. \nContent focus: \n\nInterpretation of muscle MRI and pattern recognition for various genetic muscle and neurogenic disorders and acquired inflammatory myopathies\nDelegates will be invited to present challenging cases during this workshop and there will be the opportunity for general discussion.\n\nWho is this event aimed at: \n\nThe specialist with an expertise in neuromuscular disorders and at trainees\, and will attract audiences spanning adult and paediatric medicine\nThis event will be primarily useful to clinicians / researchers at specialty training or consultant level in the areas of neurology\, neurophysiology\, radiology\, rheumatology and neuropathology
URL:https://www.treat-nmd.org/event/british-myology-society-muscle-mri-workshop-2025/
ATTACH;FMTTYPE=image/jpeg:https://www.treat-nmd.org/wp-content/uploads/2024/12/Myology.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260210T080000
DTEND;TZID=Europe/London:20260212T170000
DTSTAMP:20250802T023649
CREATED:20250520T170958Z
LAST-MODIFIED:20250521T122533Z
UID:8848-1770710400-1770915600@www.treat-nmd.org
SUMMARY:8th TREAT-NMD® International Conference – Lisbon\, 2026!
DESCRIPTION:TREAT-NMD® is internationally recognised for our key role in successfully addressing some of the major issues that face therapeutic development in neuromuscular diseases. We connect the global neuromuscular community\, inform stakeholders with essential knowledge and resources\, and advance the development of innovative treatments for neuromuscular conditions. \nWe are hosting the 8th TREAT-NMD® International Conference focusing on translational medicine in inherited neuromuscular diseases from the 10th – 12th February 2026 in Lisbon\, Portugal. \nTREAT-NMD 2026 is not just a conference—it’s a vital\, in-person gathering where patients\, clinicians\, researchers\, industry\, and regulators come together to tackle the biggest challenges in neuromuscular treatment development\, diagnosis and care. Topics will include; disrupted clinical trial delivery\, regulatory uncertainty\, global access inequalities and shrinking public funding\, we’ll tackle these themes with a holistic\, solutions-driven approach and a patient centric and global focus. \nBuilt around open discussion and real solution-building\, this is where the future of rare disease care gets shaped. \nThe conference will attract around 300 delegates including academics\, patients and carers\, patient advocacy organisations and clinical specialists. Industry professionals will have the platform to: \n• Network with partners on key issues and challenges in neuromuscular disease.\n• Engage with panels of international experts who will inform\, challenge and stimulate discussions.\n• Acquire the latest updates on standards of care\, outcome measures\, patient registries and new developments including addressing trial site capacity. \nWe look forward to your participation in the 8th TREAT-NMD International Conference and hope that you will be able to support us in delivering a truly unique event for the neuromuscular community. \nEarly Bird tickets are now available until 31st of July 2025.  If you have need an assistant to attend with you\, please get in touch via education@treat-nmd.com for a free carer pass. \nRegister here: https://www.tickettailor.com/events/treatnmd/1672102
URL:https://www.treat-nmd.org/event/8th-treat-nmd-international-conference-lisbon-2026/
LOCATION:Altis Grand Hotel\, Rua Castilho 11\, 1269-072\, Lisbon\, Portugal
CATEGORIES:Treat NMD Masterclass,Treat NMD Event
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