TREAT-NMD Privacy notice
TREAT-NMD is a global network of experts in the neuromuscular field. Everyone in our network helps us work towards our mission to accelerate the development of effective treatments; and establish the best in diagnosis and care for people worldwide.
At TREAT-NMD we protect your data like it is our own, this is our Privacy Notice to give you an overview of how we collect and use your personal information.
What personal information do we collect
Personal information is any detail that can identify you, either on its own or when combined with other details
The personal information we collect;
Your name
Date of Birth
Email address
Job title
Employers name
Your Company’s details
This is not an exhaustive list
We may also collect sensitive data, which is more confidential data to you, this data may include;
Health and medical data.
Examples of this include;
– Advising us of a disability when signing up to a masterclass or conference.
– You are participating in a project, and we get sent your medical information from a health professional.
How we collect personal information
We may collect personal data by the following ways:
Newsletter sign up
When you register for a masterclass
When you register for Conference
Participating in a project (your health professional will generally give these details)
You register for a webinar
You apply for a job
You send us emails
You consent to our video/photo taking
eLearning courses you may request to complete
This is not an exhaustive list
We only collect what is needed and no more, we then store it safely and securely
Why we collect personal information and what we do with it
We collect personal data so we can deliver the services you have requested or to complete contractual obligations.
We may also use your personal data to stay in touch with you about services or events we would thing you would be interested in.
How we protect your personal information
We are committed to protecting the security of all of the personal information we collect and use.
We use a variety of physical, administrative and technical safeguards designed to help protect it from unauthorised access, use and disclosure. We have implemented best-practice standards and controls in compliance with internationally recognized security frameworks. We use encryption technologies to protect data at rest and in transit.
Legal basis for using your personal data
We only process your personal information when we have a lawful basis to do this
Consent: We will ask for your express and informed consent every time we collect your personal data on this legal basis.
Contractual basis: We process the personal data as necessary to fulfil our contractual terms with you or our clients.
Legitimate interest: We process the names, contact details, job titles, companies of our existing and prospective clients for our marketing purposes, including market research and sales leads generation
How long we hold personal information
We only hold your personal data for as long as needed to fulfil the reason for needing it and in line with internal retention policies.
Once we no longer need your personal data we will dispose of this securely.
Sharing personal data
We do at times share your personal information; this would be to fulfil our contracted tasks which we have collected your personal information for. We make sure we have appropriate contractual agreements signed to obligate them to protection your personal information in accordance with relevant data protection legislation.
We do not sell your personal data.
It is possible that we may need to disclose personal information when required by law, subpoena or other legal processes as identified in the applicable legislation.
We will do our best to notify you about legal demands for their personal information when appropriate in our judgment unless prohibited by law or court order or when the request is an emergency.
Outside UK and EU
There may be instances where we share your data outside of the UK or EU, if this happens, we follow all relevant legislation, and your information will be protected. This could involve removing any identifying information such as your name and date of birth.
Rights
Data protection legislation allows you to have certain rights relating to the personal information we hold about you. None of these rights are absolute and are subject to exceptions and limitations.
Copy of your personal data – You can request us to send you a copy of your personal information we hold on you
Correction – You can request your information we hold to be corrected
Erasure – You can request your information to be deleted
Restrict – You can request your information to be only processed for certain things
Transfer – You can request the personal information you have given us to be electronically transferred too somewhere else.
Object – you can request your information not to be processed
Auto decision making – to request human involvement in decision making not solely by automated means
If you wish to ask about these rights, please contact our Data Protection Officer at DPO@treat-nmd.com
Withdrawing and unsubscribing
If you no longer want to receive marketing emails from us or our newsletter, we understand and would ask you to unsubscribe using the information at the bottom of the email you have received or contact our Data Protection Officer at DPO@treat-nmd.com
Cookies
We also collect information about your visits to the website and the application when you land on any of our web pages through cookies and similar tracking technology.
For further information about the types of cookies we use, you can access our Cookie Policy here.
Complaints
If you are concerned about how we are using your personal information correctly, or you have issues on how we have responded to you while exercising your rights, then you can raise a complaint directly with us using the contact details below.
You may also contact the Information Commissioner’s Office whose details are:
- Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF
- Tel: 0303 123 1113
- Website: www.ico.org.uk
Our contact information
DPO
4th Floor
The Catalyst
Newcastle upon Tyne
NE4 5TG
United Kingdom
EU representative details
contact@gdprlocal.com
Tel +35315549700
INSTANT EU GDPR REPRESENTATIVE LTD
Office 2,
12A Lower Main Street, Lucan Co. Dublin
K78 X5P8
Ireland
