CureDuchenne has launched a new caregiver course. This free virtual resource is designed to provide invaluable guidance and support to caregivers of individuals newly diagnosed with Duchenne muscular dystrophy and those navigating the first few years of diagnosis.
The CureDuchenne Caregiver Course, created by CureDuchenne physical therapists Jennifer Wallace, PT, and Doug Levine, PT, features a comprehensive series of chapters that covers essential topics related to Duchenne muscular dystrophy, empowering caregivers with the knowledge and skills they need to provide the best care and enhance the quality of life for their loved ones. Topics covered include:
• Understanding Duchenne: Caregivers will find a primer on the basics of a Duchenne muscular dystrophy diagnosis and the causes of muscle damage.
• Energy Conservation: Practical strategies are offered to help caregivers minimize muscle damage and optimize their loved one’s energy levels.
• Standards of Care: An overview of the recommended standards of care for individuals with Duchenne ensures the best possible outcomes.
• The Role of Physical Therapy: Insights are shared into the critical role that physical therapy plays in Duchenne management and the difference between clinical and school-based physical therapy.
• Stretching and Appropriate Exercise: Expert advice on safe and effective stretching techniques and exercise routines tailored to Duchenne patients is provided.
• Mobility Equipment: Guidance is offered on selecting and using mobility equipment to enhance independence and mobility.
Debra Miller, Founder and CEO of CureDuchenne, commented, “We are thrilled to launch this essential resource for caregivers of individuals with Duchenne muscular dystrophy. Our mission has always been to improve the lives of those affected by this devastating disease, and the CureDuchenne Caregiver Course is a significant step in that direction. We believe that by providing caregivers with the knowledge and tools they need, we can empower them to provide the best possible care and enhance the quality of life for their loved ones.”
The CureDuchenne Caregiver Course is accessible online through a user-friendly virtual platform, allowing caregivers to learn at their own pace and revisit essential information as needed.
