On 30th September 2024, the global community will mark the tenth annual Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day, a day dedicated to increasing understanding and visibility of the rare neuromuscular diseases classified as limb-girdle muscular dystrophy (LGMD). This day is an opportunity to shine a light on these conditions, which affect individuals worldwide, and to strengthen the efforts of those working towards better awareness, research, and support.
Limb-girdle muscular dystrophy is a group of over 30 distinct genetic conditions that cause progressive muscle weakness, primarily affecting the hips and shoulders. These diseases can appear at any age and impact people across all ethnicities and regions. Raising awareness helps to increase understanding of LGMD and its progression, fostering a more informed approach to care and treatment.
Limb-Girdle Muscular Dystrophy Awareness Day serves as a global platform to unite the community and encourage collaboration between individuals, families, healthcare professionals, researchers, and drug developers. By coming together, we can amplify awareness and strengthen efforts to improve healthcare services, drive research, and support those living with LGMD.
At TREAT-NMD, we are committed to advancing the diagnosis, care, and treatment of neuromuscular diseases like LGMD. We believe that raising awareness is key to driving progress, and we are proud to support the efforts of the LGMD community on this important day.
To stay updated on the global initiatives for LGMD Awareness Day we encourage you to follow LGMD Awareness Foundation, Inc. on your preferred social media platform as they will be sharing educational posts, interviews, and valuable information about LGMD.
Join in this Limb-Girdle Muscular Dystrophy Awareness Day to help build awareness and show your support for those living with limb-girdle muscular dystrophy.
