A now traditional February event, in its twenty-first edition, the International Conference on Duchenne and Becker muscular dystrophy is set to take place from 16 to 18 February at the Ergife Palace Hotel in Rome. This significant gathering for the DMD and BMD communities is organised by Duchenne Parent Project aps, and once again promises to be filled with opportunities for information sharing and in-depth analysis. The conference aims to unite the global Duchenne and Becker community, including patients, family members, volunteers, associations, clinicians, researchers, and pharmaceutical companies.
This year’s conference theme is ‘Everything counts: we are all part of a single harmony,’ and symbolises the unique value of each individual within the Duchenne and Becker community, emphasising the unity that binds them together. The three-day program is thoughtfully structured, featuring scientific sessions where clinicians from prominent Italian reference centres will present the latest updates on research and clinical studies. Additionally, round tables will explore topics such as socialisation, affectivity, and preimplantation genetic diagnosis, offering a comprehensive exploration of the multifaceted aspects of these disorders.
A significant highlight of the conference will be the presentation by TREAT-NMD’s CEO, David Allison, and Neil Bennett, Head of Real World Evidence, scheduled for 9.45 am local time (10.45 am UK time) on Saturday, 17th February. David and Neil will be discussing the PaLaDIn project, and ‘The Interactium’ an innovative platform for data collection designed to accelerate research, understanding, and treatment for neuromuscular and other rare diseases, and the impact it will have on the development of effective treatments, diagnosis and care for neuromuscular patients worldwide. You can find more information on the project here > https://www.treat-nmd.org/paladin-project/.
The International Conference on Duchenne and Becker muscular dystrophy serves as a vital event for keeping the Duchenne and Becker muscular dystrophy communities up to date on the latest research and treatments. Beyond the scientific discussions, it provides an invaluable space for individuals and families living with these diseases to connect, share experiences, and build a supportive network.
TREAT NMD’s involvement, particularly with the presentation of the PaLaDIn project, underlines our commitment to advancing research and treatment for neuromuscular and rare diseases. For those interested in learning more about the event and accessing the full speaker line-up, visit > https://www.parentproject.it/.
If you are attending the conference and would like to meet with TREAT-NMD during the event, please contact us at info@treat-nmd.com and we will be happy to arrange a suitable time.
