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Highlights of the 16th Euro-Latin-American Summer School of Myology (EVELAM) in Colonia de Sacramento, Uruguay.

Home / External events / Highlights of the 16th Euro-Latin-American Summer School of Myology (EVELAM) in Colonia de Sacramento, Uruguay.

Highlights of the 16th Euro-Latin-American Summer School of Myology (EVELAM) in Colonia de Sacramento, Uruguay.

After EVELAM-Asunción, Paraguay, in December 2019, the well-known Euro-Latino American Summer School of Myology (EVELAM, https://evelam.org/) had to recreate itself in a virtual format due to the COVID19 pandemic.  EVELAM 2020 and 2021 were successfully broadcast from Santiago, Chile and Sao Paulo, Brazil reaching an audience of 700 and 400 delegates respectively. Quito, Ecuador 2022 was the first post-pandemic version of EVELAM, in hybrid format, resuming in-person presence with some uncertainty as to the attendance. Nevertheless, EVELAM Quito 2022, literally at the equator of the world, was once again a success with a total of 200 delegates present on-site and online, 20 in-person international guest speakers and another 12 through recorded conferences, and 16 countries represented from the American continent and from Europe. We unanimously agreed that face-to-face communication is not replaceable by the comfort of “attending” a conference from home.

This year, EVELAM 2023 (https://evelam2023.com/) took place, in hybrid format, between November 29 and December 2, 2023, in the beautiful city of Colonia de Sacramento, Uruguay, on the banks of the River Plate, right across from the city of Buenos-Aires. The scientific program, endorsed by TREAT-NMD, touched upon various topics touched upon various topics, from basic myology to the most recent advances in the diagnosis and therapeutics of neuromuscular disorders. It also encompassed a very useful debate about the difficulties met in accessing high-cost disease-modifying therapies for spinal muscular atrophy across Latin America, as well as two workshops dedicated to clinical vignettes (for pediatric and adult patients, respectively).

The local organizing committee headed by Dr. Graciela Barros and Dr. Conrado Medici (Chair of Neuropediatrics, Pereira Rossell Hospital Center, Uruguay) did an incredible job; the renowned Uruguayan hospitality, the support from AFM-Téléthon France, and the invaluable contribution of the pharmaceutical industry from Scienza, Sanofi, Biogen, PTC and Roche were essential to guarantee the success of EVELAM 2023.

The next edition of EVELAM is scheduled for Cuzco, Perú from November 27th to 30th, 2024.  See you in Machu Picchu!  More information will be available soon at www.evelam.org

 

 

19 December 2023

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
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