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Mark Your Calendar: Key Awareness Days for 2024 Advocacy

Home / Uncategorised / Mark Your Calendar: Key Awareness Days for 2024 Advocacy

Mark Your Calendar: Key Awareness Days for 2024 Advocacy

In a world where awareness drives change and understanding, recognising specific days dedicated to various causes can be pivotal. These dates serve as crucial platforms to spotlight issues, empower communities, and foster support for individuals affected by different conditions. As we step into 2024, here are some noteworthy dates to highlight on your calendar:

11th February: International Day of Women and Girls in Science

Celebrating the achievements of women and girls in science, this day emphasizes the importance of gender equality and inclusion in scientific fields. It’s an opportunity to recognise their contributions and inspire the next generation of female scientists.

28th February: Rare Disease Day

Rare Disease Day amplifies the voices of those affected by rare conditions. It’s a moment to advocate for increased research, support, and understanding for the millions worldwide living with rare diseases and their families.

20th June: World Facioscapulohumeral Muscular Dystrophy (FSHD) Day

A day dedicated to raising awareness about Facioscapulohumeral Muscular Dystrophy (FSHD), an often misunderstood and challenging neuromuscular condition. It aims to educate and support individuals impacted by FSHD while fostering research initiatives.

7th September: World Duchenne Awareness Day

Highlighting Duchenne Muscular Dystrophy (DMD), this day brings attention to the needs and challenges faced by those living with this progressive condition. It aims to promote early diagnosis, access to care, and ongoing research.

15th September: International Myotonic Dystrophy Awareness Day

A day devoted to increasing awareness about Myotonic Dystrophy. It aims to provide support, resources, and understanding for individuals and families living with this condition.

30th September: LGMD Awareness Day

Focused on Limb-Girdle Muscular Dystrophy (LGMD), this day aims to shed light on this diverse group of muscular dystrophies. It emphasises the need for research, improved diagnosis, and access to care for individuals affected by LGMD.

October: Charcot-Marie-Tooth (CMT) Awareness Month

Throughout October, the focus is on Charcot-Marie-Tooth disease, a hereditary neurological disorder. This month-long observance aims to raise awareness, educate communities, and support individuals living with CMT.

 

 

6 December 2023

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
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    • Venue
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