Spinal Muscular Atrophy (SMA) is a progressive neurodegenerative disease that affects motor nerve cells in the spinal cord, impacting essential muscle functions such as breathing, eating, crawling, and walking. Throughout August, the global SMA community comes together to raise awareness, share stories, and advocate for continued research and support.
SMA Awareness Month is marked by a variety of campaigns led by patient organisations including CureSMA, SMA UK, and others around the world. These initiatives aim to educate the public, support families, and highlight the importance of early diagnosis and access to care.
The SMA annual candle lighting ceremony is held each year held at sunset on the second Saturday of August—this year, on Saturday 9th August. Candles are lit in memory of those who have passed away from SMA and in honour of the diverse individuals and families who make up the SMA community.
To find out how you can get involved, visit the CureSMA Awareness Month website page and are encouraged to share posts and photos to promote awareness throughout August.
