We’re excited to announce the phased launch of the new online communication portal designed specifically for registry network curators. As previewed during the June subgroup meetings, the Registry Portal is now being […]
TREAT-NMD News
August is Spinal Muscular Atrophy (SMA) Awareness Month
Spinal Muscular Atrophy (SMA) is a progressive neurodegenerative disease that affects motor nerve cells in the spinal cord, impacting essential muscle functions such as breathing, eating, crawling, and walking. Throughout […]
TREAT-NMD® at PPMD Annual Conference 2025
TREAT-NMD® was pleased to attend PPMD’s Annual Conference in Las Vegas this June, where we connected with key partners across industry, patient advocacy, and research. Representing the network were Matt […]
PaLaDIn – Interactium® Workshop
As part of the PaLaDIn project, TREAT-NMD hosted an Interactium® workshop in Amsterdam on the 16th-17th July, bringing together the PaLaDIn partners both in person and virtually. This event fostered […]
DMD and SMA Masterclasses, Prague
TREAT-NMD® recently hosted two highly successful expert masterclasses in Prague, bringing together healthcare professionals from across Europe and beyond to deepen their knowledge of spinal muscular atrophy (SMA) and Duchenne […]
Now Live: The LGMD Family Guide
We’re excited to announce the launch of the Limb-Girdle Muscular Dystrophy (LGMD) Family Guide, now available on the TREAT-NMD® website. This plain-language guide has been developed to support individuals and […]
