We’re excited to announce the launch of the Limb-Girdle Muscular Dystrophy (LGMD) Family Guide, now available on the TREAT-NMD® website.
This plain-language guide has been developed to support individuals and families affected by LGMD. It brings together contributions from nine international clinical teams, each led by a key opinion leader and a patient advocacy representative, to ensure the content is both accurate and accessible.
What’s Inside:
- An overview of LGMD and general information
- Detailed sections on seven specific subtypes: 1D/D, 2A/R1, 2B/R2, 2D/R3, 2E/R4, 2I/R9, and 2L/R12
- Practical guidance on topics such as swallowing, psychosocial support, and emerging treatments
The guide was officially launched during a dedicated session at the International LGMD Conference in Orlando, where TREAT-NMD representatives introduced it to the global community.
Our goal is to make this guide as widely accessible as possible by translating it into multiple languages. If you or your organisation can support translation efforts, please get in touch at info@treat-nmd.com.
This resource is part of our ongoing commitment to empower patients and families through accessible, high-quality information.
