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TREAT-NMD Alliance Now Accepting Applications for New Chair and Board Member of Trustees

Home / TREAT-NMD News / TREAT-NMD Alliance Now Accepting Applications for New Chair and Board Member of Trustees

TREAT-NMD Alliance Now Accepting Applications for New Chair and Board Member of Trustees

TREAT-NMD Alliance Ltd. is now accepting applications for two key positions: Chair and Trustee on our board of trustees.  Both positions play a vital role in overseeing the strategic direction of TREAT-NMD Alliance Ltd., a charity dedicated to advancing the diagnosis, care, and treatment of individuals with neuromuscular diseases.

 Role of the Chair:

As Chair of the Board of Trustees, you will be responsible for:

  • Leading the Board in the development and monitoring of the charity’s strategic aims.
  • Ensuring the Board operates effectively and meets its legal and governance responsibilities.
  • Acting as the primary spokesperson for the charity when required.
  • Providing guidance and support to the Board members and the executive team.
  • Representing TREAT-NMD Alliance Ltd. at key events and meetings.

 Role of the Trustee:

As a Trustee, you will be responsible for:

  • Collaborating with fellow Trustees to define and oversee the strategic direction of TREAT-NMD Alliance Ltd.
  • Ensuring the charity complies with all legal and regulatory requirements.
  • Reviewing the work of the charity, assessing its impact, and making recommendations for improvement.
  • Contributing your expertise and experience to guide decision-making on key issues.
  • Attending Board meetings and actively participating in discussions and decisions.

In addition to the Board of Trustees, TREAT-NMD Services Ltd., our business arm, is overseen by a Board of Directors, which reports directly to the Board of Trustees. TREAT-NMD Services Ltd. is the wholly owned trading subsidiary of TREAT-NMD Alliance Ltd. We also have a Neuromuscular Disease Executive Advisory Committee (NMDAC), composed of clinicians, researchers, patients, and other experts, is elected by our members to identify priority focus areas for the charity. These areas contribute to shaping the strategic direction of TREAT-NMD Alliance Ltd., as reviewed and guided by the Board of Trustees.

We are extremely grateful for the dedication of our Board members in advancing the mission of TREAT-NMD. If you are interested in applying for the Chair or Trustee position, we encourage you to submit your application and help us continue our important work.

We will review applications and those shortlisted will be asked to join a call with the CEO to give more detail on the responsibilities of the position, processes and commitment required. Final shortlisted candidates will be invited to meet with representatives from the board to further discuss why they would be the perfect fit for the Board of Trustees.  Please note, new Trustees would be expected to be onboarded by June 2025 so please keep this in mind when applying for the position.

The application submission deadline 24th March so early applications are encouraged as the closing date may close earlier depending on the level of applications.

Apply Here
18 February 2025

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us