PaLaDIn, an Innovative Health Initiative Joint Undertaking (IHI JU) funded project, aims to enhance healthcare outcomes for individuals with neuromuscular and other rare diseases through the development of ‘The Interactium’, a global, patient-centric data platform. By gathering comprehensive patient data on health status and experiences, the PaLaDIn consortium will ensure that patients’ voices are integral to healthcare decision-making. The PaLaDIn platform aims to accelerate the development of effective treatments, improve patient-reported outcome measures (PROMs), and inform healthcare decisions.
The development of ‘The Interactium’ platform is at the heart of the PaLaDIn project. As we continue to develop the scope for it’s build, collecting the requirements and wishes of key stakeholders from around the neuromuscular diseases community is vital – to ensure the project creates something that provides real value and impact to support improved decision making.
We have been working alongside other PaLaDIn partners to engage different groups, and most recently we held an industry engagement workshop alongside the TACT events in Boston. This brought together more than ten companies from across the neuromuscular disease space – from small biotechs to large pharmaceutical companies, those working at early and late stages, and those developing drugs in different diseases. The wish list identified by the group will be incorporated into the Interactium requirements as we start the system build next year.
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This project is supported by the Innovative Health Initiative Joint Undertaking (IHI JU) under grant agreement No 101132943. The JU receives support from the European Union’s Horizon Europe research and innovation programme, COCIR, EFPIA, EuropaBio, MedTech Europe, Vaccines Europe (and the FSHD Society and TREAT-NMD Services Ltd as contributing partners participating in the project). The project will also receive funding from UK Research and Innovation (UKRI) under the UK government’s Horizon Europe funding guarantee [grant numbers 10105921, 10103989, and 10083579]
The PaLaDIn consortium is made up of 9 partners across 5 countries, including 3 European Member States, 1 Associated Country, and 1 Third Country.
