To celebrate 15 years of successful TACT meetings we are very happy to announce some additional events which will take place at the Autumn meeting. Scheduled for October 31st, we will host our very first symposium by the advisory committee: “Developing Therapies in Rare Neuromuscular Disease,”. This symposium promises a day filled with insightful talks, reflecting on the wealth of knowledge gleaned over the past 15 years of TACT’s operation.
News
SMA Europe launches their Call for Research nr. 12
This new Call for SMA research projects is open to research proposals that address the needs of people who live with SMA and demonstrate a clear pathway to impacting those in the short or longer term.
Applications For the Duchenne Parent Project Netherlands’ 2024 Research Grant Are Now Open!
The 2024 research grant presents an opportunity to shape the future landscape of Duchenne research. By funding innovative projects and fostering collaboration, Duchenne Parent Project Netherlands aims to accelerate progress towards effective treatments and therapies for Duchenne muscular dystrophy.
Celebrating International Women’s Day 2024: Honouring the Inspirational Females of TREAT-NMD and Beyond
As we celebrate International Women’s Day 2024, TREAT-NMD proudly acknowledges and honours the extraordinary contributions of the fantastic females within our organisation and the inspiring women we collaborate with in the neuromuscular field. Today, we reflect on the profound impact these individuals have made in advancing research, patient care, and advocacy.
TREAT-NMD Shines at HMA/EMA Multi Stakeholder Workshop on Patient Registries
TREAT-NMD were honoured to be invited to the Joint Heads of Medicines Agencies (HMA) and European Medicines Agency (EMA) Multistakeholder workshop on Patient Registries, held in Amsterdam on February 12th and 13th. The workshop brought together a diverse array of stakeholders, including representatives from patient registries, regulatory agencies, pharmaceutical companies, patients, healthcare professionals, academics, and health technology assessment bodies.
Illuminating Hope: TREAT-NMD’s Commitment to Rare Disease Day
In a world that often overlooks the challenges faced by those with rare diseases, Rare Disease Day serves as a beacon of hope, a day dedicated to raising awareness and advocating for change. With 300 million people worldwide grappling with rare diseases, the need for collective action is more crucial than ever.
