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New Partnership Brings Hope for Duchenne Muscular Dystrophy

Home / TREAT-NMD News / New Partnership Brings Hope for Duchenne Muscular Dystrophy
New Partnership Brings Hope for Duchenne Muscular Dystrophy

New Partnership Brings Hope for Duchenne Muscular Dystrophy

At TREAT-NMD, we are passionate about advancing the diagnosis, care and treatment for those living with neuromuscular disease and we are pleased to share the exciting news about the new partnership between CureDuchenne and Blizzard Entertainment.  The partnership aims to support the fight against Duchenne muscular dystrophy (DMD) through a unique in-game promotion in the popular game World of Warcraft®, helping to raise vital funds and awareness for DMD.
The collaboration is inspired by the life of Mats Steen, a Norwegian gamer who touched many hearts as he navigated his adventures in World of Warcraft under the in-game name ‘Ibelin‘. Mats, who lived with Duchenne muscular dystrophy, showcased the power of community and friendship through his gaming experiences. Following his passing at the young age of 25, his family discovered the profound connections he formed and the joy he brought to others, a testament to the impact of gaming as a platform for connection and support.
From now until 7th January 2025, World of Warcraft players can adopt a limited-edition pet, Reven, as part of the charity initiative known as The Reven Pack. With 100% of the proceeds going directly to CureDuchenne this initiative not only honours Mats’ legacy but also supports crucial research aimed at improving and extending the lives of those affected by Duchenne muscular dystrophy.
For more information on how to purchase the Reven Pack, support this initiative and to help make a difference please visit CureDuchenne’s official page. You can watch Mats’ inspiring documentary, ‘The Remarkable Life of Ibelin’ on Netflix now.
1 November 2024

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us