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Harnessing Technology to Improve Lives in Neuromuscular Disease

Home / TREAT-NMD News / Harnessing Technology to Improve Lives in Neuromuscular Disease

Harnessing Technology to Improve Lives in Neuromuscular Disease

TREAT-NMD is taking bold steps to ensure it remains at the forefront of innovation in rare disease care. As a global leader in advancing treatments for neuromuscular disease through education, data, and collaborative networks, TREAT-NMD is now investing in developing future-proofed technology solutions to better serve the patient community.

A cornerstone of this effort is our leadership in the European-funded PaLaDIn project. At the heart of PaLaDIn is Interactium—a next-generation platform designed to securely combine diverse data sources to provide a holistic understanding of rare diseases and elevate the patient voice in clinical and policy decision-making.

To support this ambitious journey, TREAT-NMD has established a revitalized Information Technology Advisory Committee (ITAC), bringing together exceptional expertise to challenge, guide, and future-proof our digital strategy.

The new ITAC will be chaired by Barbara Harpham (former CEO of Heart Research UK and Chair of the Medical Technology Group), alongside Alan Timothy (TREAT-NMD CTO), and Graham Kay (Paladin WP5 Project Lead and Secretariat). The group is further strengthened by David Raper, a seasoned technology operations leader advising on IT infrastructure and cloud strategy, and Lesley Chapman, a retail brand and customer experience expert focusing on user engagement and retention.

The Committee held its inaugural meeting this week and received an overview of the Interactium vision and the Paladin workstreams. Additional members will be appointed to ensure well-rounded, external scrutiny of our technology development.

This is a significant milestone that reinforces TREAT-NMD’s commitment to leveraging technology for the benefit of patients worldwide.

To find out more about the committee and the PaLaDin project please contact: info@treat-nmd.com

27 June 2025

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us