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New Translation of the Spinal Muscular Atrophy Guide for Families

Home / TREAT-NMD News / New Translation of the Spinal Muscular Atrophy Guide for Families

New Translation of the Spinal Muscular Atrophy Guide for Families

We are excited to announce that a new addition to our collection of Family Guide translations is now available.

Due to the fantastic work of the Croatian Muscular Dystrophy Association, we now have the Standards of Care Family Guide available in Croatian.  The translation was made possible by Marica Mirić, President of the Croatian Muscular Dystrophy Association, and reviewed by Dr. Davorka Vranješ, University Hospital Centre Zagreb.

The guides are based on the 2017 Standards of Care for Spinal Muscular Atrophy (SMA) and provide valuable information for families and patients about aspects of care and treatment.

This latest translation means that our SMA Family Guide is now available in 10 different languages including French, Spanish, Ukrainian and Macedonian.  These fantastic resources are free to view and download on the TREAT-NMD website and we hope to add even more translations in the future.

For more information about the SMA Guide for Families, or to offer your support in translating our guides to other languages, please contact: education@treat-nmd.com.

4 July 2024

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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
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    • Newsletter Sign-up
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