This Saturday, September 7th, marks World Duchenne Awareness Day (WDAD), an important occasion to raise awareness for Duchenne. Around the globe, communities come together to shine a light on these conditions, highlighting the need for greater support, research, and care.
News
Spinal Muscular Atrophy Awareness Month 2024: Advancing Diagnosis, Care & Treatment
August holds significant importance for our community as we unite to advance spinal muscular atrophy (SMA) care and research, and to raise awareness of the disease. Observing SMA Awareness Month throughout August, we aim to raise awareness, educate, advocate, and support those affected by SMA. This annual campaign serves as a beacon of hope, fostering awareness and driving fundraising efforts to find a cure while empowering those living with SMA to live life to the fullest.
cTAP Study Indicates Duchenne Muscular Dystrophy Clinical Trial Enrollment Criteria Should Expand Beyond Ambulatory Status
A recent study, conducted by the collaborative Trajectory Analysis Project (cTAP) and its international partners, has established some key criteria that could help drug developers identify groups of patients who […]
Therapeutic Grant Call: Developing Transformative DMD Therapies
Therapeutic grant call for developing transformative DMD therapies. – submissions accepted until 4th August 2024.
Announcing New E-Learning Courses for Physiotherapists on POD-NMD LMS Platform
We are excited to announce the launch of two new e-learning courses on our POD-NMD LMS platform, specifically designed for physiotherapists working with individuals with neuromuscular conditions.
Join Us at the Becker Muscular Dystrophy Education and Engagement Patient Event in Europe 2024!
We are thrilled to announce registrations are now open for our inaugural Becker Muscular Dystrophy Education and Engagement Patient Event. This groundbreaking event is specifically designed for patients with Becker Muscular Dystrophy (BMD) and promises to be a landmark occasion for the BMD community.
