At TREAT-NMD, we are passionate about advancing the diagnosis, care and treatment for those living with neuromuscular disease and couldn’t be happier to hear about this new partnership between CureDuchenne and Blizzard Entertainment. The partnership aims to support the fight against Duchenne muscular dystrophy (DMD) through a unique in-game promotion in the popular game World of Warcraft®, helping to raise vital funds and awareness for DMD.
News
October is Charcot-Marie-Tooth (CMT) Awareness Month in the UK
This month, the spotlight is on Charcot-Marie-Tooth disease (CMT), a hereditary condition that affects the peripheral nerves, leading to muscle weakness and sensory changes, particularly in the hands and feet. Despite the complexity of this condition, the theme for this year, “Nobody Is Perfect”, emphasises that everyone is different, and regardless of how CMT affects someone, they can achieve great things.
Early Diagnosis of Duchenne Muscular Dystrophy: Insights from TREAT-NMD’s International Workshop
A new report on the early diagnosis of Duchenne muscular dystrophy (DMD) has been published in the Journal of Neuromuscular Disorders. This report summarises the findings from TREAT-NMD’s 2023 international workshop, which brought together 42 experts from Europe, the US, and Australasia, including healthcare professionals, researchers, and individuals with lived experience.
Developing Care Guidelines for DMD Patients Following an Early Diagnosis
Duchenne muscular dystrophy (DMD) is the most prevalent form of muscular dystrophy, affecting approximately 1 in 5,000 boys, resulting in progressive muscle weakness which significantly impacts the lifespan of those […]
Call for Applicants for TACT Review in Athens
The TREAT-NMD Advisory Committee for Therapeutics (TACT) held it’s Autumn meeting in Boston earlier this month. Four therapies for neuromuscular diseases were thoroughly reviewed by our expert panel who will […]
Last Chance to Register for Celebrating 15 Years with TACT!
Don’t miss your chance to be part of a landmark event! Join us on October 31st at the Hyatt Regency in Boston as we proudly celebrate 15 years of the […]
