With deepest gratitude, we extend our thanks to the incredible individuals who have generously shared their expertise, guidance, and precious time, driving forward our mission to transform the diagnosis, care, and treatment of those living with neuromuscular diseases. TREAT-NMD’s work would not be possible without the incredible contributions of our global community—thank you for being a part of this journey.
News
TREAT-NMD at MDA 2025: Shaping the Future of Neuromuscular Medicine
TREAT-NMD is proud to participate in the upcoming 2025 MDA Clinical & Scientific Conference , an unparalleled gathering of global leaders dedicated to advancing neuromuscular disease research and care.
Highlights of the 17th Euro-Latin-American Summer School of Myology (EVELAM) in Urubamba, Cusco, Peru.
From November 26th to 30th, more than 240 professionals interested in myology gathered at the Vidawasi Cultural Center to attend the 17th Euro-Latin American Summer School of Myology (EVELAM […]
Project PaLaDIn Update
We have been working alongside other PaLaDIn partners to engage different groups, and most recently we held an industry engagement workshop alongside the TACT events in Boston. This brought together more than ten companies from across the neuromuscular disease space – from small biotechs to large pharmaceutical companies, those working at early and late stages, and those developing drugs in different diseases. The wish list identified by the group will be incorporated into the Interactium requirements as we start the system build next year.
Highlights from the TACT Symposium Developing Therapies for Rare Neuromuscular Diseases
The recent TACT Symposium, Developing Therapies in Rare Neuromuscular Diseases, which took place in Boston on the 31st of October, highlighted significant progress made in developing therapies over the past 15 years. Bringing together experts, researchers, clinicians, and stakeholders, the symposium focused on key milestones and lessons learned in improving patient outcomes.
BMD guidelines are now available in Italian, Spanish, English, Dutch, German and French
Working in collaboration with Parent Project – an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy, TREAT-NMD has previously coordinated the translation of the guidelines into Spanish, and now into Dutch, German and French. Parent Project have also coordinated the translation of the document into English, thus making it available to an extremely wide international audience.
