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Tag: TREAT-NMD news

Home / Archives for TREAT-NMD news

TREAT-NMD news

TREAT-NMD Shines at HMA/EMA Multi Stakeholder Workshop on Patient Registries

HMA-EMA Multi Stakeholder Workshop on Patient Registries

TREAT-NMD were honoured to be invited to the Joint Heads of Medicines Agencies (HMA) and European Medicines Agency (EMA) Multistakeholder workshop on Patient Registries, held in Amsterdam on February 12th and 13th. The workshop brought together a diverse array of stakeholders, including representatives from patient registries, regulatory agencies, pharmaceutical companies, patients, healthcare professionals, academics, and health technology assessment bodies.

6 March 2024

Illuminating Hope: TREAT-NMD’s Commitment to Rare Disease Day

Rare Disease Day 2024

In a world that often overlooks the challenges faced by those with rare diseases, Rare Disease Day serves as a beacon of hope, a day dedicated to raising awareness and advocating for change. With 300 million people worldwide grappling with rare diseases, the need for collective action is more crucial than ever.

29 February 2024

Join TREAT-NMD Advisory Committee for Therapeutics (TACT) in Boston: A Call for Therapeutic Innovators

Join us for TACT Boston

If you are ready to take your drug development program to the next level, we encourage you to join us in Boston for the upcoming TACT meeting. Seize this opportunity to engage with top-tier experts, refine your strategy, and propel your therapeutic innovation forward.

21 February 2024

Unlocking the Future of Rare Diseases: TREAT-NMD at World Orphan Drug Congress USA 2024

World Orphan Drug Congress USA 2024

TREAT-NMD is honoured to be a media partner for this years World Orphan Drug Congress USA 2024 being held at the Boston Convention & Exhibition Centre from April 23 to April 25, 2024.

21 February 2024

Applications for the TREAT-NMD Masterclass Event 2024 are now OPEN!

Image shows TREAT-NMD promotional banner next to microphone and screen ready for presentation.

We are now accepting applications for our Masterclass Event 2024 in Dubai, UAE. This event is primarily for healthcare professionals, clinical researchers and allied health providers working in the Middle East region.

15 February 2024

TREAT-NMD Unveils Groundbreaking Programme to Revolutionise Rare Disease Treatment

David Allison, CEO At TREAT NMD

TREAT-NMD are proud to announce the launch of the PaLaDIn project, an incredibly exciting and ambitious new project that aims to accelerate research, understanding and treatment for neuromuscular and other rare diseases.

15 February 2024
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  • Home
  • Who We Are
    • About Us
    • Partnerships and Collaborations
    • Governance
    • Our Team
  • Who We Support
    • Patients
    • Clinicians / Researchers
    • Life Sciences Industry
  • What We Do
    • Advisory Committee for Therapeutics
      • Members of the Advisory Committee for Therapeutics
      • Take Part in TACT
      • Past Applicants
    • The Global Registry Network
      • Members of the Registry Network
    • Core Datasets
      • DM dataset
      • DMD dataset
      • FSHD dataset
      • LGMD
      • SMA
    • Education
      • Masterclasses and Events
      • Digital Resources
      • Endorsement of External Programmes
    • Post-Marketing Surveillance
  • Resources and Support
    • Neuromuscular Disease Information
      • Becker muscular dystrophy
      • Charcot-Marie-Tooth
      • Congenital muscular dystrophy
      • Congenital myasthenic syndromes
      • Duchenne muscular dystrophy
      • Facioscapulohumeral muscular dystrophy
      • GNE myopathy
      • Limb girdle muscular dystrophy
      • Myotonic dystrophy
      • Myotubular and centronuclear myopathies
      • Spinal muscular atrophy
    • Research Overview
      • DMD
        • Gene Therapy for DMD
        • Mutation Specific Approaches
        • Cell Therapy
        • Drug Therapy
    • Standards of Care & Family Guides
      • CM Care
      • CMD Care
      • DM Care
      • DMD Care
      • BMD Care
      • FSHD Care
      • SMA Care
    • SOP Library
      • MDX Mouse (DMD)
      • GRMD Dog (DMD)
      • CMD Mouse (CMD)
      • SMA Mouse (SMA)
      • CMD animal models
      • MDC1A Preclinical Research
      • Cell Lines
        • Clinical Outcome Measures
        • Functional Evaluation Tools
        • NMR (MRI/MRS) Imaging
        • Muscle Biopsy
    • Social and Ethical Issues
  • Conference
    • Registration
    • Sponsorship Opportunities
    • Conference Programme
    • Sponsors of the TREAT-NMD 8th International Conference
    • Programme Committee
    • Abstracts
    • Venue
  • News & Events
    • News
    • TREAT-NMD Events
    • All Events
    • Submit an Event
    • Newsletter Sign-up
    • Contact Us