The World Orphan Drug Congress USA is the defining event for the rare disease and orphan drug space globally. Widely regarded as the most important event for all rare disease […]
External event
Unlocking the Future of Rare Diseases: TREAT-NMD at World Orphan Drug Congress USA 2024
TREAT-NMD is honoured to be a media partner for this years World Orphan Drug Congress USA 2024 being held at the Boston Convention & Exhibition Centre from April 23 to April 25, 2024.
TREAT-NMD Joins the 21st International Conference on Duchenne and Becker Muscular Dystrophy in Rome
TREAT-NMD will be attending the Parent Project aps 21st International Conference on Duchenne and Becker Muscular Dystrophy in Rome. CEO, David Allison, and Neil Bennett, Head of Real World Evidence will be discussing the PaLaDIn project, and ‘The Interactium’ an innovative platform for data collection.
Recordati Rare Disease Foundation (RRDF) course “Metabolic myopathies – challenges and solutions” held in Split, Croatia on May 16-18, 2024.
RRDF courses have already for many years been an excellent opportunity for all those who need specific education in the field of inborn errors of metabolism. The topic of metabolic […]
CureDuchenne Announces Educational Events for Families and Caregivers of Individuals with Duchenne or Becker Muscular Dystrophy
CureDuchenne has announced its schedule of CureDuchenne Cares workshops and dinner sessions for the first half of 2024, as well as its annual conference.
Highlights of the 16th Euro-Latin-American Summer School of Myology (EVELAM) in Colonia de Sacramento, Uruguay.
After EVELAM-Asunción, Paraguay, in December 2019, the well-known Euro-Latino American Summer School of Myology (EVELAM, https://evelam.org/) had to recreate itself in a virtual format due to the COVID19 pandemic. EVELAM […]
