At TREAT-NMD, our mission is to foster a collaborative, inclusive global network and organisational infrastructure. Our goal is to overcome fragmentation and provide essential support services, information, and data that drive advancements in treatment, diagnosis, and care for neuromuscular patients worldwide. In line with this mission, we are proud to support the Journal of Neuromuscular Diseases (JND), a publication that plays a pivotal role in disseminating cutting-edge research and clinical findings in our field.
TREAT-NMD News
Transforming Lives: TREAT-NMD’s Latest Impact Report
At TREAT-NMD, our commitment to advancing the diagnosis, treatment, and care for those affected by neuromuscular diseases is unwavering. We are thrilled to unveil our 2022 – 2023 impact report, showcasing the strides we’ve made in pursuit of this critical mission.
TREAT-NMD Achieves ISO 27001:2022 Accreditation for Information Security Management System
We are thrilled to announce that TREAT-NMD has achieved the prestigious ISO 27001:2022 accreditation for our Information Security Management System (ISMS). This milestone underscores our unwavering dedication to ensuring the secure and safe management of all information and systems entrusted to us.
Celebrating 15 Years of TACT: A Milestone Event in Boston
To celebrate 15 years of successful TACT meetings we are very happy to announce some additional events which will take place at the Autumn meeting. Scheduled for October 31st, we will host our very first symposium by the advisory committee: “Developing Therapies in Rare Neuromuscular Disease,”. This symposium promises a day filled with insightful talks, reflecting on the wealth of knowledge gleaned over the past 15 years of TACT’s operation.
Celebrating International Women’s Day 2024: Honouring the Inspirational Females of TREAT-NMD and Beyond
As we celebrate International Women’s Day 2024, TREAT-NMD proudly acknowledges and honours the extraordinary contributions of the fantastic females within our organisation and the inspiring women we collaborate with in the neuromuscular field. Today, we reflect on the profound impact these individuals have made in advancing research, patient care, and advocacy.
TREAT-NMD Shines at HMA/EMA Multi Stakeholder Workshop on Patient Registries
TREAT-NMD were honoured to be invited to the Joint Heads of Medicines Agencies (HMA) and European Medicines Agency (EMA) Multistakeholder workshop on Patient Registries, held in Amsterdam on February 12th and 13th. The workshop brought together a diverse array of stakeholders, including representatives from patient registries, regulatory agencies, pharmaceutical companies, patients, healthcare professionals, academics, and health technology assessment bodies.
