Becker muscular dystrophy (BMD) is a genetic condition that causes a weakness in the muscles that progresses over time leading to increasing disability and has a significant impact on the lives of those affected. Becker Muscular Dystrophy Awareness Week offers an opportunity to ensure that individuals living with BMD, along with their families, are not only informed but also supported and connected to a wider community.
TREAT-NMD News
TREAT-NMD Expert Myotonic Dystrophy Type 1 Masterclass – Virtual Event on 16th January 2025
Healthcare providers involved in the diagnosis and management of patients living with Myotonic dystrophy type 1 (DM1) are invited to express their interest to attend a high-quality educational event […]
International Myotonic Dystrophy Awareness Day – September 15th
On September 15th, the global community recognises International Myotonic Dystrophy Awareness Day, an important occasion dedicated to raising awareness about myotonic dystrophy (DM) and its profound impact on individuals and families. This day aims to draw the attention of not only the general public but also policy makers, regulators, biopharmaceutical representatives, researchers, and healthcare professionals, all of whom play a vital role in changing the future for those affected by this condition.
World Duchenne Awareness Day 2024: Raising Our Voices for Duchenne
This Saturday, September 7th, marks World Duchenne Awareness Day (WDAD), an important occasion to raise awareness for Duchenne. Around the globe, communities come together to shine a light on these conditions, highlighting the need for greater support, research, and care.
Spinal Muscular Atrophy Awareness Month 2024: Advancing Diagnosis, Care & Treatment
August holds significant importance for our community as we unite to advance spinal muscular atrophy (SMA) care and research, and to raise awareness of the disease. Observing SMA Awareness Month throughout August, we aim to raise awareness, educate, advocate, and support those affected by SMA. This annual campaign serves as a beacon of hope, fostering awareness and driving fundraising efforts to find a cure while empowering those living with SMA to live life to the fullest.
Therapeutic Grant Call: Developing Transformative DMD Therapies
Therapeutic grant call for developing transformative DMD therapies. – submissions accepted until 4th August 2024.
