Working in collaboration with Parent Project – an association of patients and parents with children affected by Duchenne and Becker muscular dystrophy, TREAT-NMD has previously coordinated the translation of the guidelines into Spanish, and now into Dutch, German and French. Parent Project have also coordinated the translation of the document into English, thus making it available to an extremely wide international audience.
TREAT-NMD News
New Partnership Brings Hope for Duchenne Muscular Dystrophy
At TREAT-NMD, we are passionate about advancing the diagnosis, care and treatment for those living with neuromuscular disease and couldn’t be happier to hear about this new partnership between CureDuchenne and Blizzard Entertainment. The partnership aims to support the fight against Duchenne muscular dystrophy (DMD) through a unique in-game promotion in the popular game World of Warcraft®, helping to raise vital funds and awareness for DMD.
October is Charcot-Marie-Tooth (CMT) Awareness Month in the UK
This month, the spotlight is on Charcot-Marie-Tooth disease (CMT), a hereditary condition that affects the peripheral nerves, leading to muscle weakness and sensory changes, particularly in the hands and feet. Despite the complexity of this condition, the theme for this year, “Nobody Is Perfect”, emphasises that everyone is different, and regardless of how CMT affects someone, they can achieve great things.
Early Diagnosis of Duchenne Muscular Dystrophy: Insights from TREAT-NMD’s International Workshop
A new report on the early diagnosis of Duchenne muscular dystrophy (DMD) has been published in the Journal of Neuromuscular Disorders. This report summarises the findings from TREAT-NMD’s 2023 international workshop, which brought together 42 experts from Europe, the US, and Australasia, including healthcare professionals, researchers, and individuals with lived experience.
Guest Blog: My Journey with Becker Muscular Dystrophy By David Hick
Read David Hick’s inspiring journey living with Becker Muscular Dystrophy. From diagnosis to participating in clinical trials, David shares how he’s navigating life with BMD and raising awareness through his music.
Connecting the Becker Muscular Dystrophy Community: Highlights from Amsterdam and Milan Education Days
On Saturday 14th September 2024 with the support of patient organisations we connected the Becker muscular dystrophy (BMD) community from countries across Europe at two Becker Education and Engagement Days in Amsterdam and Milan. With instantaneous translations in English, Italian, Dutch, French, Spanish, and German, the Becker European community were able to learn about managing BMD from leading experts but also, meet in person, learn from, and support each other.
