A new report on the early diagnosis of Duchenne muscular dystrophy (DMD) has been published in the Journal of Neuromuscular Disorders. This report summarises the findings from TREAT-NMD’s 2023 international workshop, which brought together 42 experts from Europe, the US, and Australasia, including healthcare professionals, researchers, and individuals with lived experience.
TREAT-NMD news
Guest Blog: My Journey with Becker Muscular Dystrophy By David Hick
Read David Hick’s inspiring journey living with Becker Muscular Dystrophy. From diagnosis to participating in clinical trials, David shares how he’s navigating life with BMD and raising awareness through his music.
Connecting the Becker Muscular Dystrophy Community: Highlights from Amsterdam and Milan Education Days
On Saturday 14th September 2024 with the support of patient organisations we connected the Becker muscular dystrophy (BMD) community from countries across Europe at two Becker Education and Engagement Days in Amsterdam and Milan. With instantaneous translations in English, Italian, Dutch, French, Spanish, and German, the Becker European community were able to learn about managing BMD from leading experts but also, meet in person, learn from, and support each other.
Becker Muscular Dystrophy Awareness Week: 6th – 12th October
Becker muscular dystrophy (BMD) is a genetic condition that causes a weakness in the muscles that progresses over time leading to increasing disability and has a significant impact on the lives of those affected. Becker Muscular Dystrophy Awareness Week offers an opportunity to ensure that individuals living with BMD, along with their families, are not only informed but also supported and connected to a wider community.
Limb-Girdle Muscular Dystrophy Awareness Day – 30th September 2024
At TREAT-NMD, we are committed to advancing the diagnosis, care, and treatment of neuromuscular diseases like LGMD. We believe that raising awareness is key to driving progress, and we are proud to support the efforts of the LGMD community on this important day.
TREAT-NMD Expert Myotonic Dystrophy Type 1 Masterclass – Virtual Event on 16th January 2025
Healthcare providers involved in the diagnosis and management of patients living with Myotonic dystrophy type 1 (DM1) are invited to express their interest to attend a high-quality educational event […]
